I think everyone knows now that I’ve been diagnosed with Multiple Sclerosis. That was Friday the 13th of November.
I came out of hospital after my first round of steroids and I’ve spoken to a lot of friends who would have called me to say hi, but didn’t know what exactly to say.
The problem is that people don’t know what MS is. Or what it means. Many people I’ve spoken to have known other people with it and they were terrified that I was like that. They assumed the worst.
The treatments for MS have changed. It’s not an easy diagnosis. But at the same time it is manageable and I may never know I even have MS.
Boo and I made up a video last night to show you. Because when people first heard about this, they assumed I was in a wheelchair, or couldn’t talk. Or went blind. Worst case scenario’s which don’t apply to me.
For the moment, I’ve lost the ability to use my left hand. I’m left handed so it will take time to adjust. With medication I might just get it back too. Best case scenario.
I’m still me. I’m still crazy. I’m still the same old Tim that everyone knows and hopefully loves
Comments would be appreciated. I don’t know what it’s like to be on the other side of the fence. What did you think and feel when you heard about my diagnosis?
Ok here is my comment
When I first heard about the MS I was scared for all of you…Growing Up I always did the MS read-a-thon and even after doing that I didnt know what MS was. Ive since looked it up and are a little less scared for you but when a person hears that kind of thing I think as a society we automatically jump to the worst possible conclusion.
Tim…Keep positive and never doubt the ability of your will power, if you want to get something done you will do it…Like the video said, same old Tim..just special is all
Jaime…Life throws things at us and we either crumble or we stand our ground and say it wont beat us. Most know you have had your share of having things thrown at you and you can decide to stand your ground or crumble..I know you will choose the right one
Jaxon…I bet Mummy and Daddy have loved you since you were in Mummy’s tummy but I think that since Daddy’s news they look at you and love you just that little bit more now Give them a hug for me and tell them in your way that everything will be just fine.
Strength in numbers guys, you have a well knitted support group out here and we are all here to catch you if anyone falls.
Hey Tim.
I too was scared for you when I heard the news. I haven’t seen you for a while BUT you were always so full of life that my first response was”That is so unfair”. You gave Big W DC life! Such a character. But after reading your blog I know that your great attitude to life will be your greatest “personal” strength. Boo and Jaxon will be your greatest Physical strength. My thoughts and prayers are with you all.
Hi Guys,
When I first found out I was very sad. Watching that video was very interesting as I know very little about MS. I know how strong you are and I know you can take anything and beat it. Good luck my fingers are crossed for you all. If there is anything I can ever do just let me know. Hug and kisses Tash xox
I had already seen this video – Boo sent it to me on email. I found it comforting to see you not as bad as I expected.
My only experience with MS is a close family friend who had chronic progressive M.S.
I was so happy to hear you would be able to be home while going to rehab instead of staying there 24/7. I sent you a little something to catch up on some reading anyway.
xoxo
Hi ya guys,
Well that is just amazing, i was like oh no thats horrible,my heart sank,….thought thats not fair, as you guys have been thru some difficult times … I see this video, i see your strength, i see your humour and possitivity … i see your ability to own your “specialness”
Bless you guys, you taught me love and friendship all those years ago, now its strength…. like many have said to you, if ever you need or want anything even if it is just to reconnect, please dont hesitate to do so… You guys meant alot to me then, and still do….
You guys are amazing, Tim, good on ya mate! Thank you for showing us what M.S. means for you. Amazing.Thank you.
Keep on Swimming!
Terri
oxoxoxoxoxoxoxoxoxo
Time the first thing that came to mind for me is that it’s been diagnosed early and that is one of the best ways to live a long and productive life with this disease. Second to mind was that there are lots of new treatments and medicines being discovered that can help. Third, maybe this should have been first, but third was that you have a wonderful and strong wife, a solid family to build upon and to lean upon while you all live with this.